I've been in pain since I can remember.
I have chronic fatigue.
My joints pop out of place.
I pass out.
I have brain fog.
I get flares of my symptoms and require days to recover.
I am in my 30s and my bones are in their 60s with painful bone spurs in my hips and lower back.
I am disabled.
I can measure time in blood draws, I have countless doctors, I've tried most of the medications on TV commercials, and been tested for an unreasonable number of illnesses.
I was misdiagnosed for 14 years, finally properly diagnosed in 2015 with 6 different chronic illnesses (ehlers-danlos syndrome (EDS), fibromyalgia, postular orthostatic tachycardia syndrome (POTS), osteoarthritis, degenerative disk disease, and polycystic ovarian syndrome (PCOS).
At my worst, I was frustrated and defeated, not feeling heard by doctors or even friends and family.
I was beaten up by the medical system and got FED UP!
Now I advocate for myself. For example… did you know that if a doctor refuses to test you for something, you can say "I want you to note in my chart that I requested this and you denied it"… just watch them order that test :) That type of advocating has helped me have a whole new perspective with my treatment. I am in control of my treatment, and I choose how to navigate my illnesses.
I'm so sorry if you relate to any of my story, and yet that probably means we’d work really well together, because I get it. I’ve been there, and I can help! I'd love to work with you to help you feel better!